罕見疾病

罕見疾病學童就學需求之研究 = = A survey on the educational needs among school children with rare diseases / by: (Language materials, printed)

罕病練功路 / by: (Language materials, printed)

我的小王子 = Letter to Lou / by: (Projected and video material)

微笑天使向前走 : = 逆境家庭的生命復原力 / by: (Language materials, printed)

9個萬分之一的相聚 / by: (Language materials, printed)

未年輕已老去 : = 每個當下都是最珍貴的祝福,百歲少女海莉的生命故事 / by: (Language materials, printed)

今生相遇 : = 罕病旅人誌 / by: (Language materials, printed)

亮亮的任務 / by: (Language materials, printed)

月亮的禮物(普瑞德威利氏症候群) / by: (Language materials, printed)

娜娜的夢境(苯酮尿症) / by: (Language materials, printed)

天使阿康的秘密(外胚層增生不良症) / by: (Language materials, printed)

陽光小潔(結節性硬化症) / by: (Language materials, printed)

跳舞吧!不一樣的女孩(肌肉萎縮症) / by: (Language materials, printed)

小人兒大志氣(軟骨發育不全症) / by: (Language materials, printed)

大鬍子獵人醫師(重型海洋性貧血) / by: (Language materials, printed)

直角王國的新朋友(亨丁頓氏舞蹈症) / by: (Language materials, printed)

大英雄威廉(威廉斯氏症) / by: (Language materials, printed)

泡泡妹的奇幻旅程(遺傳性表皮分解性水皰症) / by: (Language materials, printed)

玻璃娃娃青青的天空(成骨不全症) / by: (Language materials, printed)

孩子, 你是我最幸福的一堂課 by: (Electronic resources)

回首，我與你的相遇: = 罕見疾病手足的生活經驗探究= Deep Encounter: Exploring the Lived Experience with Sibling of Rare Diseases / by: (Language materials, printed)

開發實驗室檢測管理架構及罕病與難症基因體檢測給付政策 = = Laboratory developed tests and reimbursement of genetic tests for rare and hard-to-diagnose diseases: regulatory strategies and policy / by: (Language materials, printed)

幽香百合 : = 罕病兒母親之心路歷程研究 =Fragrant lily : a study on the psychological journey of mothers of children with rare diseases / by: (Language materials, printed)

認識罕見疾病 = = An introduction to rare diseases / . (II) by: (Language materials, printed)

人生很難,就想活成喜歡的樣子 by: (Electronic resources)

讓泡泡龍的夢想起飛 = 成功大學國際傷口修復與再生中心的全人醫療實踐 / by: (Electronic resources)

罕見 : = 財團法人罕見疾病基金會會訊 / by: (Language materials, printed)

一生罕見的幸福 / by: (Language materials, printed)

國小罕見疾病學童教師指引手冊 / by: (Language materials, printed)

孩子,請為我活下去 / by: (Language materials, printed)

沙灘上的小腳印 / by: (Language materials, printed)

維維的故事 = = Vivi's story : 與患有阿佩爾氏綜合症的女兒同行 / by: (Language materials, printed)

週末的那堂課 / by: (Language materials, printed)

罕藥彌補愛無憾 / by: (Language materials, printed)

不落跑老爸 / by: (Language materials, printed)

選擇性緘默症資源手冊 / by: (Language materials, printed)

9個萬分之一的相聚 by: (Electronic resources)

向麻煩Say yes! : = 台灣首位罕病街頭藝人的人生筆記 / by: (Language materials, printed)

一生罕見的幸福. = 走下去,才有驚喜! /. II by: (Electronic resources)

讓泡泡龍的夢想起飛 : = 成功大學國際傷口修復與再生中心的全人醫療實踐 / by: (Language materials, printed)